This is why The TBCD Foundation is my life's work. TBCD is cruel, relentless, and fast. The rage and sorrow keeps me going, but some days I feel like I could just break. I refuse to lose any more lives to this than we have to. We love you, Quillen. #cureTBCD #TBCD #raredisease #leukodystrophy #thatisnotfair #notfair