Today is International DDX3X day- a day to celebrate and raise awareness for all these amazing kids with this rare disease- including our sweet Virginia who was the first child diagnosed in the US back in 2014. Many of us gathered this weekend in Arkansas for our 4th annual family fun weekend. We played, bonded, met new members of our tribe, and caught up with old friends, ran a 5k, and had an incredible concert by @madison_watkins 💜. What an extra special weekend for these extra special kids. It is just always magical to be with these families. The relief, the joy, the camaraderie, and the deep understanding is just unparalleled. @ahchastain thanks so much for opening up your gorgeous property once again and putting so much hard work and dedication into this incredible event. @chelseyhathaway - @lizberg310 and I could not do this without you! 💜. If you would like to support our cause, donation link is in my profile and on stories. More info on DDX3X.org