It was such a pleasure to speak with Jessica Lynn at @patientworthy ♥️ Thank you for sharing more about the incredible @stxbp1_foundation our story and #FLOURISH. Posted @withrepost • @patientworthy Receiving a #RareDisease diagnosis is hard. Trying to understand the progression of a rare disease is hard. Working towards a treatment and cure — also hard. But when Bridget Finn learned that her daughter Flo was diagnosed with a rare #GeneticDisorder called #STXBP1, she had no doubt that she would endure whatever hard situations she had to to provide the best life for her daughter. Bridget shares: “I repeatedly asked if Flo would ever live independently. That’s the one thing I could come up with, hope for my child, that she could meet her own needs, care for herself, and live independently. And the genetic counselor told me, ‘no one ever has.’” Recently, Bridget partnered with @christiesinc to present FLOURISH: Art for the Future — Supporting a Cure for STXBP1 Disorders. She spoke about this fundraiser, Flo’s story, and advice for other families in a recent interview with Patient Worthy. The first part of the interview is now LIVE on the PW website! . . . . #PatientWorthy #Interview #RareDisease #Genetics #RareDiseaseAwareness #FineArt #ContemporaryArt #FundFlourish #STXBP1Disorders #STXBP1Strong #STXBP1Advocate #MedicalMom #GeneticDisease #geneticcounseling #curestxbp1 #fundflourish