🛑ATTENTION: Our Mini Summit is tomorrow. It's not too late to join us. Register here: https://sturge-weber.org/participate/swf-education-days.html . . . . . #sturgewebersyndrome #swfunited #sturgeweberfoundation #portwinestain #birthmarks #seizures #sturgeweberfamily #sturgeweberfriends #portwinebirthmark #raredisease #KlippelTrenaunaySyndrome #SWFWarrior #SWFWarriorMama #ourwhy