❤ On Sunday, the SWF came together with over 35 participants from around the world. They were able to learn about nasal emergency meds, the importance of good mental health, the BVMC project and how to register, and what to consider when choosing a group home. 👏 Thank you to everyone who was on the ZOOM call. Let us know in the comments what you like best about the Mini Education Summit. 👉 Thank you to Lara Falcon, and Raj Sandhar, PhD from UCB and also to Luis Sandoval, PhD; Jeff Loeb, MD; Liana, Shirley and Lighthouse Christian Home for all the informative talks. ❤ And, of course, thank you to our sponsor UCB UCB 👉 The day was very successful and looking forward to seeing everyone on November 5th at our next Mini-Summit. #sturgewebersyndrome #swfunited #sturgeweberfoundation #portwinestain #birthmarks #seizures #sturgeweberfamily #sturgeweberfriends #portwinebirthmark #raredisease #KlippelTrenaunaySyndrome #SWFWarrior #SWFWarriorMama