“As soon as he could hold his head up without help he started to use those icy blues to humorous effect. I can honestly say that I’ve never seen an infant stare a grown man down until I met Zander.” You can read more about Zander and others in our "Stories of Hope" booklet available on ISSUU. www.sturge-weber.org/who-we-are/hope-rising While you are there, share your story with us and be an encourager. . . . . . #sturgewebersyndrome #swfunited #sturgeweberfoundation #portwinestain #birthmarks #seizures #sturgeweberfamily #sturgeweberfriends #portwinebirthmark #raredisease #KlippelTrenaunaySyndrome #SWFWarrior #SWFWarriorMama #OurWhy #SWFjourneystoriesofhope