"Writing this article has taught me a lot more about EDS: It’s been upsetting to report on the terrible experiences some have suffered, but I’ve been awestruck by the dedication of people, many with the condition themselves, who are working to find solutions."⁠ ⁠ Thank you to @SarahSkywriter who has written a piece for @CNN, sharing her daughter Poppy's journey after her diagnosis of Ehlers-Danlos syndrome (EDS), for raising awareness, and to everyone involved in this article who is working hard to change futures for the global EDS and HSD community. Click the linkinbio to read now! ⁠