Tomorrow, June 28, 2021 my life officially changes. It is the day I have brain surgery and give myself an opportunity for the best life. On October 18, 2018 I woke up to someone I did not recognize. After a few years battle of not knowing what was wrong with me and many doctors I was officially diagnosed with a brain malformation called Chiari Malformation. Chiari Malformation is a condition in which my brain essentially grew larger than it was supposed to not giving it the proper spinal fluid flow ultimately causing a number of debilitating symptoms that present daily. Specifically in my case the 4th ventricle of my brain gets little to no flow and so decompression surgery is performed. Chiari malformation can commonly be known as an invisible illness. You may not physically see it when looking at those suffering but the individual is battling agonizing pain. I see the world through dizzy eyes, fighting my own body’s off balance, blacking out, watching the world spin in real time day after day. I often lose my words, sleep is physically painful and sometimes I don’t even recognize my own home. I often Question what it feels like to be “normal” feeling hopeless while still holding hope knowing I have a God given purpose. A symbol of my condition is the butterfly and the color of my condition is purple. And so the is my official transformation. From a caterpillar in a cocoon battling the elements just trying to grow and fulfill my full butterfly. Today is day I begin to share my journey with all of you! Today is the day I OWN me. I am Art of Hannah Jane a soon to be Brain surgery survivor, an invisible illness warrior and I am strong, I am resilient, I am a Butterfly watch me transform and embrace my wings. I am me and I am proud to be a Chiari Warrior. 🦋 Thank you to the incredible people who have been apart of this journey with me. God has truly given me an incredible support system. To this team, thank you for helping me put together this shoot and bring awareness to highlight everyone Who suffers from a chronic illness. You gave me so much strength and I am truly thankful. Photographer: @jonnycreative Makeup: @dajavumakeup Hair: @kevadeva