anya__kay
Oct 27
219
6.17%
Hi lovesđ October is Dysautonomia Awareness Month and before it comes to an end, I wanted to make sure I posted to help spread awarenessđAlthough officially recognized in October, we should be posting and bringing light to this invisible, yet unbelievably debilitating illness, more than one month out of the year!
As someone who has been distant from social media for some time, I myself, havenât been doing my part for my fellow Dysautonomia community đIâm always the first to speak up in any room, encouraging others to live their most authentic lives, and somewhere along the way, I forgot to take my own advice. We shouldnât be silent for something we battle every hour of every day, along with millions of others. While I wish Iâve done more, many of us tend to disappear and become invisible, just like our illness as we go through the ups and downs.
But this is MEâI am a POTS warrior, fighting from the moment I open my eyes to when I shut them to sleep, for 10 years now. Most people donât understand what an âinvisibleâ illness really is - you can look fine, doesnât mean you need to be bedridden every single day. You can still live a life in between the challenges. It may not be the life you imagined and you will need to adapt A LOT, but there is still a world out there that is ready for the new you!
The reason I say ânew youâ is because this is part of the healing, at least it was for me. The moment I stopped saying things like âI used to be, I used to do, I was....â and changed to âI am, I can do, I will beâ is when I began living in the present and believed in the opportunity of my future.
Note: There are at least 15 different types of Dysautonomiaâmost common are neurocardiogenic syncope and POTS.
Be Mindful: Many people are developing POTS after Covid, as viruses can trigger this response. Iâve spoken to people who felt symptoms as early as one week, all the way to a year later. If you think you or someone you know may have POTS symptoms, pls DM me, I can help!
Letâs keep fighting together fellow Potsiesđ one day at a time! Trust me, Iâve been doing it for a decade đ Swipe to know more đ
anya__kay
Oct 27
219
6.17%
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