midwestcowboy_
Sep 30
125
9.64%
Flourish
- “Approximately 282 individuals have been
described in the literature, and there are an
estimated 750 cases known worldwide." My friend
@zozzymalone asked me as a second pair of eyes to
come be a very small part in an effort to help bring
awareness and raise funding for @fundflourish for an
extremely rare disorder known as STXBP1. To be
graced and introduced to @sambeaubien &
@bridgetkfinn and their daughter Flo, I'm forever
humbled to be welcomed into a sensitive space in an
effort to find a chance to change peoples lives as
research, understanding and development continues
to unravel for STXBP1.
midwestcowboy_
Sep 30
125
9.64%
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