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*NEW BLOG* “A Day in the Life of Adelaide Grace”
On Monday, CURE Epilepsy will release a short documentary about a day in the life with Adelaide. It focuses on an average morning in our home circa February 2018 – six months before I even started this blog. It is admittedly a challenging watch and includes Adelaide having a seizure, however I think it is important to share this life. To break through the apathy and lead with empathy. This was our normal, our so very not-normal normal - and remains a version of normal for 65 million people living with epilepsy worldwide and that will never be ok.
This week I share my thoughts on watching this sacred 30 minutes documentary four years later and hope you will watch on Monday.
Image description: Kelly wearing a grey t-shirt is kissing Adelaide's cheek as she holds her on Adelaide's bed in her bedroom. Adelaide's eyes are closed and her tongue is slightly sticking out of her mouth.
#InchstonesByKC #Inchstones #Adelaideybug #InfantileSpasms #InfantileSpasmsAwareness #Epilepsy #EpilepsyAwareness #CUREEpilepsy #Grief #GriefJourney #ChildLoss
kellygc411
Dec 2
620
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