After 13 VERY long days in the CTICU We are home! 🤍😭 on January 4th Maya had her Glenn procedure (open heart) everything went well but during the recovery process they couldn’t figure out why Mayas oxygen wouldn’t go up. On January 10th Maya ended up back in the OR for a cath lab procedure because they thought they needed to place another stent or coil some things off in there to help with her oxygen. But that wasn’t the case, they didn’t find anything they needed to do which was good but she was back on a ventilator for the second time in 6 days and that was very hard to watch. The day after she got off her second ventilator she had an episode of what they think was pulmonary hypertension and may be the reason for her oxygen dropping and I watched her monitor just keep dropping with lots of doctors coming in her room... the fear I had was something I’ve never felt before. Maya will be going home on oxygen for now. We have to get reassessed in a few weeks once her lungs are healed from everything she went through. Not what we were expecting for recovery but being in childrens hospital for 2 weeks I am absolutely blessed that I get to take my child home. It’s very eye opening to be here. Cory and I had so many ups and downs with maya it was the most stressful thing in I think both of our lives and I will remember this forever. That all being said Mayas heart surgery is working amazing! She has one big one left but please god not for a few years 🙏🏼 My heart goes out to any parents going through ANYTHING with their child’s health. You’ll never know until you’re watching your own child struggle. I love you so much Maya Grace but never do that again please 😂 We love your new beauty mark 🫀thank you everyone for your prayers they were definitely heard 🙌🏼